Recent Additions
Recent Additions
Newish toolkit on FASD by the American Academy of Pediatrics
NEW VIDEO by FAFASD: a 10-minute piece covering the basics of FASD really well, and including many faces--a few with FAS, many with no recognizable features.
ARTICLES
These are just a few of the articles that have been helpful to us--many more coming!
Pulls together foundational research by most of the luminaries in the field, a clear and concise digest.
The widely-shared piece outlining mistakes USUALLY made by not only attorneys but "helpers" of all sorts.
This is by the two docs who run both the Seattle FASD Diagnostic Clinic AND the Adoption Clinic at UW. It gives a readable compendium of the effects of various prenatal exposures, and does so extremely responsibly--erring (if at all) on the side of caution, making sure we are all very clear that one cannot assume too much.
Canada has prepared a guidebook for law enforcement, plus the brief "card" for officers to carry with them as a reminder:
Paul Connor is a neuropsychologist with the Seattle FASD group--this is a thorough piece on assessment of adults with FASD and well-tailored interventions once assessed:
A brief article on the dangers of suddenly withdrawing from alcohol while pregnant--thought-provoking:
P renatal exposure and withdrawal (Thomas & Riley)
From the team at the Seattle Clinic--family friendly, useful in advocating for early intervention::
Manual for FASD-informed perinatal treatment centers, published by California State Alcohol and Drug Programs (Page):
Somewhat controversial but popular chart created long ago showing the multiplicity of overlaps with other conditions
Screening tool used in a halfway house in Canada that specializes in probable FASD -- note the part about the nature of the crime committed:
Brief screen developed by Gideon Koren that distinguishes FASD from non-FASD AD/HD
A one-page fact sheet with citations (Page)
Why is fasd diagnosis so important. Written by a Speech Language Pathologist who specializes in adoptive kids and FASD, according to her bio. Victoria says: In my opinion, a very good article that a lot of people from all over should read.
ALCOHOL RELATED BRAIN DAMAGE OFTEN GOES UNDIAGNOSED, SAYS REPORT
Jacqui Wise London
ABSTRACT
Between 80% and 90% of cases of alcohol related brain damage go undiagnosed, says a new report that calls for more services to support these patients.
The report by the Royal College of Psychiatrists, the Royal College of Physicians, the Royal College of General Practitioners, and the Association of British Neurologists said that three quarters of people with alcohol related brain damage improve with the right multidisciplinary care.Alcohol related brain damage is an umbrella term for the psychoneurological and cognitive conditions associated
...
Read Full Article,
http:// www.bmj.com/content/348/bmj.g3409?view=long&pmid=24846774
HENNEPIN COUNTY 200: The 200 Most Expensive Families in Hennepin County, Minnesota. 1999. This careful study documents the services used, the costs of those services, and the people who use them, looking for patterns underlying such dependence on County intervention. Fetal alcohol is implicated throughout. The math works out to around $3 Million per lifetime, just as estimated elsewhere.
VIDEOS
David Boulding, explaining FASD graphically and humorously in 9 and a half minutes:
"Recovering Hope"--one-hour intimate look at 5 mothers in recovery and their children. Truly hopeful, one of the classics:
A talk by Kathy Page at the MIND Institute, advocating for considering fetal alcohol in the presence of developmental disorders:
One of several videos on this website made years ago in Santa Clara County--there are others with judges, physicians, and birth moms as well.
Four-and-a-half-minute video by one of our advisors, Lyn Laboriel, MD, Director of the FASD Clinic atthe Violence Intervention Project in Los Angeles, where all foster children are seen by physicians. Dr. Laboriel was just given an award by the United Nations for her role in diagnosing and treating FASD.
Six-minute video from 2011 outlining latest prevalence studies by Phil May, who says between 2 and 7% of school children are on the fetal alcohol spectrum
WEBSITES
Website from one of the states we aspire to emulate:
Website of the Alaska Partnership on FASD--the state's very effective matrix of partnersreally getting things done
From Alberta, Canada, the state that has managed to provide diagnosis and support across systems--website full of useful resources:
Dian Malbin's excellent work:
University of Washington's Fetal Alcohol Syndrome Diagnostic and Prevention Network--the original home of Ann Streissguth, Sterling Clarren, Susan Astley and the source of much of the seminal work on diagnosis, intervention and prevention. Some wonderful articles and other materials available here: